In English

On this site you can read short stories, all personal accounts about everyday life with RMDs, MSDs, rheumatism, reumatoid artrhitis. Or about what role chronic illness playes. These are real stories about how an illness invades every aspect of life, sometimes in small ways, sometimes greatly. I, Yvonne, have been diagnosed with reumatoïd arthritis. Over the years the number of diagnosis increased: osteoporosis, secundaire osteoarthritis and scoliosis. In my stories I generally refer to reumatoid arthritis because that causes the most problems. I have a positive outlook on life (sometimes against all odds). And generally find my own way around my physical disabilities. You can find more information about the stories if you scroll down this page. Or find them at the dropdown menu bar “In English”. Or click on the titel that intigues you: My mother, Ouch, Its all in a name, Fairy tale, Mammoth, Your hand, Rabbit, Fall.

All the drawings in this website are made by Yvonne. Materials used are mostly coloring pencil and black fine-liner. Please note that it is forbidden to replicatie or use texts and/or drawings without my permission.

In time I will be translating all my texts into English. If you want to be kept informed about new texts please let me know at info@evenyvonne.nl. I am not a native speaker, please forgive me my mistakes. Or even better: please let me know when you find any so I can correct my texts.


My mother

It began when I was a young, ten year old girl. I was hospitalized for
three months. I was ill and in pain. And I was generally mad, at the world, at my mother…..

I grew up having reumatoid arthritis. My mom played a great part in facilitating my life. How must she have felt about her little girl? Read more.


Ouch

Having an RMD hurts. You can try to remedy physical pain with medication. But there is another kind of pain.

This is a small story about however thick you grow your skin, someone will find a weak spot. Read story


It’s all in a name


Finding a diagnosis is one of the important things done in a hospital. Your medical examinations there are based upon what your doctor expects it to be. You are adrift as long as you don’t know the name to put on your dizziness, your pain, extreme fatigue or other symptoms. You will keep looking for a name, a direction. Questions remain unanswered: Is there a treatment for it? And if so what? Or do I have to learn to live with it? And if so how?

Names are important, the respresent something, express something. That is also true when dealing with illness. Read more.


Fairy tale

Sometimes I feel like the little mermaid. No, not Ariël from the animated movie. Fairytales as told by Disney and collegues are meant for children. They all end happily ever after and the bad guys have to do community service. But fairy tales as told or made up  a long time ago were not for the tenderhearted.

Why do I feel like the Little Mermaid? And what part do Little Red Riding Hood and Snow White’s stepmother play? Read all about it.


mammoth


I’m an old patient with several RMDs. No, I’m not old in life years but I have lived many years with reumatoid arthritis. Scoliosis, osetoarthritis and osteoporosis were added diagnosis over time. It all started when I was ten years old, in what can now be called the MDS Stone Age.

The Stone age has passed but where are we now? And how do I now with my many years of having several RMDs fit in present day? Read


Your hand

He had no clue, how much he helped me. I thoroughly enjoyed him during my pregnancy. He tickled the inside of my belly, I felt I was never alone. Really, I missed that once I gave birth to him. My reumatoid arthrits didn’t  trouble me, it had been a while since I had had so much energy and had felt so good as during those months being pregnant. But shortly after the delivery suddenly reumatoid arthritis reared its ugly head: I couldn’t  cycle any more, I could hardly walk, I badly needed support.

Read my story about how my child supported me, how we both grew and eventually both learned to stand on our own. This essay was written for the Edgar Stene Prize 2018. It won second prize in the Netherlands.


Rabbit

One summer we were to take care of our friends’ rabbit “Little Dot” for three weeks. On day five I found it dead in its hutch. After conferring with the owners, who were on holiday in Italy, I went to the nearby woods with my two sons and some shovels in order to bury it. That turned out to be more difficult than I had thought.

How does an RMD of my reumatoid arthritis come into this? What happened next? Read more


Fall

I am scared to fall. With my hands and elbows distorted by reumatoid arthritis I cannot break a fall. My affected knees and feet are fragile. Of all people, I had to fall down the stairs.  All the way from top to bottom.

Read more about how I had to really, really take it slow after falling down the stairs. And how I made a drawing about my situation and found hapiness.